{"id":28718,"date":"2024-02-29T17:33:47","date_gmt":"2024-02-29T16:33:47","guid":{"rendered":"http:\/\/sjd.es\/primera-piedra-edificio-unicas-sjd-barcelona\/"},"modified":"2024-03-01T09:37:14","modified_gmt":"2024-03-01T08:37:14","slug":"primera-pedra-edifici-unicas-sjd-barcelona","status":"publish","type":"post","link":"https:\/\/sjd.es\/ca\/primera-pedra-edifici-unicas-sjd-barcelona\/","title":{"rendered":"L&#8217;Hospital Sant Joan de D\u00e9u Barcelona inicia la construcci\u00f3 d&#8217;\u00danicas SJD, centre especialitzat en malalties minorit\u00e0ries"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\">L&#8217;<a href=\"https:\/\/www.sjdhospitalbarcelona.org\/es\">Hospital Sant Joan de D\u00e9u Barcelona<\/a> inicia la construcci\u00f3 d&#8217;<a href=\"https:\/\/www.sjdhospitalbarcelona.org\/es\/hospital\/proyectos-estrategicos\/red-unicas-atencion-enfermedades-minoritarias\">\u00danicas SJD<\/a>, un centre dedicat a l&#8217;atenci\u00f3 i la recerca de malalties minorit\u00e0ries. Aquest edifici, que concentrar\u00e0 tots els espais assistencials i de recerca per al diagn\u00f2stic i el tractament de les patologies poc freq\u00fcents d&#8217;origen gen\u00e8tic i immunol\u00f2gic, es convertir\u00e0 en un dels tres complexos m\u00e9s grans del m\u00f3n dedicats a les malalties rares quan entri en funcionament, a finals de l&#8217;any 2025. <\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Aquest mat\u00ed ha tingut lloc l&#8217;acte de col\u00b7locaci\u00f3 de la primera pedra en el que han participat el  superior provincial, germ\u00e0 Amador Fern\u00e1ndez juntament al conseller de Salut de la Generalitat de Catalunya, Manel Balcells; l&#8217;alcaldessa d&#8217;Esplugues de Llobregat, Pilar D\u00edaz i el gerent de l&#8217;hospital, Manel del Castillo. Per part de Sant Joan de D\u00e9u tamb\u00e9 han estat presents el conseller provincial, germ\u00e0 Jos\u00e9 Luis Fonseca; el director general, Juan Jos\u00e9 Afonso; el responsable de l&#8217;\u00e0rea Social, Salvador Maneu; el director territorial, Emili Bargall\u00f3, aix\u00ed com diferents directius d&#8217;altres centres de Sant Joan de D\u00e9u.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">El superior provincial ha destact el paper dels professionalos que \u201cs\u00f3n els que heu pensat i dissenyat aquest edifici, els que el posareu en marxa i que sou la pedra angular d&#8217;\u00danicas, &#8211; destacant que,- els edificis s\u00f3n necessaris per\u00f2 el m\u00e9s important s\u00f3n les persones que ho omplen de sentit\u00bb. <\/p>\n\n\n\n<figure class=\"wp-block-image aligncenter size-full\"><a data-lg-transition=\"disabled\" href=\"http:\/\/sjd.es\/wp-content\/uploads\/2024\/02\/2024_ESP_primera_piedra_Amador.png\"><img decoding=\"async\" src=\"data:image\/gif;base64,R0lGODlhAQABAIAAAAAAAP\/\/\/yH5BAEAAAAALAAAAAABAAEAAAIBRAA7\" data-src=\"http:\/\/sjd.es\/wp-content\/uploads\/2024\/02\/2024_ESP_primera_piedra_Amador.png\" alt=\"\" class=\"wp-image-28696 lazyload\" style=\"aspect-ratio:1;object-fit:cover\"><noscript><img decoding=\"async\" width=\"416\" height=\"567\" src=\"http:\/\/sjd.es\/wp-content\/uploads\/2024\/02\/2024_ESP_primera_piedra_Amador.png\" alt=\"\" class=\"wp-image-28696\" style=\"aspect-ratio:1;object-fit:cover\" srcset=\"https:\/\/sjd.es\/wp-content\/uploads\/2024\/02\/2024_ESP_primera_piedra_Amador.png 416w, https:\/\/sjd.es\/wp-content\/uploads\/2024\/02\/2024_ESP_primera_piedra_Amador-367x500.png 367w, https:\/\/sjd.es\/wp-content\/uploads\/2024\/02\/2024_ESP_primera_piedra_Amador-50x68.png 50w\" sizes=\"(max-width: 416px) 100vw, 416px\" \/><\/noscript><\/a><figcaption class=\"wp-element-caption\">El germ\u00e0 Amador Fern\u00e1ndez adre\u00e7ant unes paraules als assistents<\/figcaption><\/figure>\n\n\n\n<h5 class=\"wp-block-heading has-acundario-color has-text-color has-link-color wp-elements-1\"><strong>Xarxa \u00danicas SJD<\/strong><\/h5>\n\n\n\n<p class=\"wp-block-paragraph\">L&#8217;edifici \u00danicas SJD ser\u00e0, a m\u00e9s, un dels nodes de la xarxa \u00danicas, una xarxa integrada per 30 centres hospitalaris de tot l&#8217;Estat que l&#8217;Hospital Sant Joan de D\u00e9u i la <a href=\"https:\/\/www.enfermedades-raras.org\/\">Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras (FEDER)<\/a> han promogut per a garantir que els infants amb patologies minorit\u00e0ries tinguin acc\u00e9s al millor tractament, independentment del lloc on visquin.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">La xarxa \u00danicas est\u00e0 coordinada pel <a href=\"https:\/\/www.sanidad.gob.es\/\">Ministerio de Sanidad<\/a> i pels governs auton\u00f2mics a trav\u00e9s del <a href=\"https:\/\/www.sanidad.gob.es\/ca\/organizacion\/consejoInterterri\/home.htm\">Consell Interterritorial del Sistema Nacional de Salut<\/a> y te com objectiu donar resposta a totes les necessitats que presentin aquestes patologies: d&#8217;integraci\u00f3, de diagn\u00f2stic, de capacitaci\u00f3, d&#8217;accessibilitat, de dades i terapies.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u00danicas SJD ser\u00e0 una realitat gr\u00e0cies al suport de les diferents administracions  p\u00fabliques i a les donacions aportades per la societat civil: fundacions, entitats ciutadanes, associacions de pacients. <\/p>\n\n\n\n<p class=\"wp-block-paragraph\">L&#8217;edifici es construir\u00e0 en uns terrenys situats a 250 metres de dist\u00e0ncia de l&#8217;Hospital Sant Joan de D\u00e9u, entre els municipis de Barcelona i d&#8217;Esplugues de Llobregat. El disseny reflectir\u00e0 la seva funci\u00f3, amb una fa\u00e7ana inspirada en estructures gen\u00e8tiques i prote\u00efques.  Comptar\u00e0 amb instal\u00b7lacions especialitzades per a consultes, diagn\u00f2stic, recerca i tractament, facilitant l&#8217;atenci\u00f3 integral en un mateix espai. A m\u00e9s, s&#8217;enfocar\u00e0 a la telemedicina i el seguiment remot de pacients. <\/p>\n\n\n\n<p class=\"wp-block-paragraph\">L&#8217;Hospital Sant Joan de D\u00e9u, referent en el tractament de malalties minorit\u00e0ries, ha at\u00e9s m\u00e9s de 30,000 pacients. Amb projectes com l&#8217;Institut Pedi\u00e0tric de Malalties Rares i el SJD Pediatric Cancer Center Barcelona, ha liderat aven\u00e7os en diagn\u00f2stic i en tractament. \u00danicas SJD, previst per a 2025, enfortir\u00e0 aquesta tasca i abordar\u00e0 les necessitats emergents en aquest crucial camp de la medicina.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Per a m\u00e9s informaci\u00f3, clickeu <a href=\"https:\/\/www.sjdhospitalbarcelona.org\/ca\/noticies\/comencen-obres-dunicas-sjd-centre-monografic-lassistencia-investigacio-malalties-minoritaries\">aqu\u00ed<\/a>.<\/p>\n\n\n\n\n\n<p class=\"has-text-align-center gutenslider-content-initial has-larger-font-size wp-block-paragraph\"><\/p>\n\n\n\n\n\n<p class=\"has-text-align-center gutenslider-content-initial has-larger-font-size wp-block-paragraph\"><\/p>\n\n\n\n\n\n<p class=\"has-text-align-center gutenslider-content-initial has-larger-font-size wp-block-paragraph\"><\/p>\n\n\n\n\n\n<p class=\"has-text-align-center gutenslider-content-initial has-larger-font-size wp-block-paragraph\"><\/p>\n\n\n","protected":false},"excerpt":{"rendered":"<p>L&#8217;Hospital Sant Joan de D\u00e9u Barcelona inicia la construcci\u00f3 d&#8217;\u00danicas SJD, un centre dedicat a l&#8217;atenci\u00f3 i la recerca de malalties minorit\u00e0ries. Aquest edifici, que concentrar\u00e0 tots els espais assistencials [&hellip;]<\/p>\n","protected":false},"author":10,"featured_media":28693,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"inline_featured_image":false,"_EventAllDay":false,"_EventTimezone":"","_EventStartDate":"","_EventEndDate":"","_EventStartDateUTC":"","_EventEndDateUTC":"","_EventShowMap":false,"_EventShowMapLink":false,"_EventURL":"","_EventCost":"","_EventCostDescription":"","_EventCurrencySymbol":"","_EventCurrencyCode":"","_EventCurrencyPosition":"","_EventDateTimeSeparator":"","_EventTimeRangeSeparator":"","_EventOrganizerID":[],"_EventVenueID":[],"_OrganizerEmail":"","_OrganizerPhone":"","_OrganizerWebsite":"","_VenueAddress":"","_VenueCity":"","_VenueCountry":"","_VenueProvince":"","_VenueState":"","_VenueZip":"","_VenuePhone":"","_VenueURL":"","_VenueStateProvince":"","_VenueLat":"","_VenueLng":"","_VenueShowMap":false,"_VenueShowMapLink":false,"_FSMCFIC_featured_image_caption":"","_FSMCFIC_featured_image_nocaption":"","_FSMCFIC_featured_image_hide":"","footnotes":""},"categories":[398,394,387],"class_list":["post-28718","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-infancia-ca","category-actualitat","category-centres-ca"],"acf":[],"yoast_head":"<!-- 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