{"id":33798,"date":"2024-10-11T10:41:58","date_gmt":"2024-10-11T08:41:58","guid":{"rendered":"http:\/\/sjd.es\/?p=33798"},"modified":"2024-10-11T10:42:01","modified_gmt":"2024-10-11T08:42:01","slug":"sant-joan-de-deu-adverteix-de-les-mancances-en-lacces-a-les-cures-pal%c2%b7liatives-a-espanya","status":"publish","type":"post","link":"https:\/\/sjd.es\/ca\/sant-joan-de-deu-adverteix-de-les-mancances-en-lacces-a-les-cures-pal%c2%b7liatives-a-espanya\/","title":{"rendered":"Sant Joan de D\u00e9u adverteix de les mancances en l&#8217;acc\u00e9s a les cures pal\u00b7liatives a Espanya"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\"><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-primario-color\">Sant Joan de D\u00e9u compta amb 12 dispositius de cures pal\u00b7liatives al nostre pa\u00eds, on, des de fa m\u00e9s de 30 anys, presta tamb\u00e9 cures pal\u00b7liatives domicili\u00e0ries tant en pacients adults com pedi\u00e0trics.<\/mark><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-primario-color\">Aquesta instituci\u00f3 adverteix que nom\u00e9s el 50% dels pacients que necessiten cures pal\u00b7liatives a Espanya hi accedeix. A m\u00e9s, les mancances en cures pal\u00b7liatives s\u00f3n encara m\u00e9s grans en pacients pedi\u00e0trics.<\/mark><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Enguany, en el Dia Mundial de les Cures Pal\u00b7liatives, 12 d&#8217;octubre, es compleix una d\u00e8cada des de la resoluci\u00f3 de l&#8217;OMS sobre cures pal\u00b7liatives, un aniversari en el qual l&#8217;organisme internacional convida a l&#8217;an\u00e0lisi i la reflexi\u00f3 a nivell global.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">A Espanya, adverteix el director general de Sant Joan de D\u00e9u Espanya, Juan Jos\u00e9 Afonso, \u201cencara existeixen moltes mancances quan parlem de cures pal\u00b7liatives, d&#8217;Atenci\u00f3 Interm\u00e8dia\u2026 parlem del final de la vida i de moments de m\u00e0xima vulnerabilitat, on hem de procurar al pacient les millors cures tant assistencials com humanes, sense oblidar-nos del seu entorn, de la seva fam\u00edlia, que es veu afectada no nom\u00e9s emocionalment sin\u00f3 tamb\u00e9 f\u00edsicament, per la qual cosa pot suposar la cura d&#8217;un \u00e9sser estimat en aquesta situaci\u00f3. Aix\u00ed ho hem ent\u00e8s sempre a Sant Joan de D\u00e9u i aquesta \u00e9s la filosofia que seguim en tots els nostres centres i dispositius, m\u00e9s de 80 a Espanya i 400 a tot el m\u00f3n\u201d.<\/p>\n\n\n\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\">\n<p class=\"wp-block-paragraph\">Juan Jos\u00e9\u00a0Afonso: \u201cencara existeixen moltes mancances quan parlem de cures pal\u00b7liatives, d&#8217;Atenci\u00f3 Interm\u00e8dia&#8230; parlem del final de la vida i de moments de m\u00e0xima vulnerabilitat, on hem de procurar al pacient les millors cures tant assistencials com humanes, sense oblidar-nos del seu entorn, de la seva fam\u00edlia\u201d.<\/p>\n<\/blockquote>\n\n\n\n<p class=\"wp-block-paragraph\">Segons Julio G\u00f3mez, coordinador de la Unitat de Cures Pal\u00b7liatives de l&#8217;Hospital San Juan de Dios de Santurtzi, al nostre pa\u00eds el repte principal \u00e9s precisament el de l&#8217;acc\u00e9s que, en la seva opini\u00f3, \u201cdep\u00e8n del codi postal en el qual visqui el pacient. No \u00e9s el mateix fer-ho en una comunitat aut\u00f2noma que en una altra, ni \u00e9s el mateix en zones rurals que urbanes\u201d.<br><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">El 2023, afegeix, \u201cs&#8217;estima que 308.475 persones van necessitar atenci\u00f3 pal\u00b7liativa al nostre pa\u00eds. No obstant aix\u00f2, diversos informes han posat de manifest que nom\u00e9s es va arribar a garantir aquesta prestaci\u00f3 en la meitat dels casos\u201d. Si b\u00e9 reconeix que durant alguns anys va haver-hi una progressi\u00f3 en aquest sentit, actualment, \u201chi ha un estancament\u201d.<br><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">En aquest sentit, des de Sant Joan de D\u00e9u s&#8217;advoca per la creaci\u00f3 d&#8217;una llei de cures pal\u00b7liatives que garanteixi el seu acc\u00e9s com a dret perqu\u00e8, com explica Julio G\u00f3mez, \u201cparlem de pal\u00b7liar el patiment al final de la vida i de garantir la dignitat de la persona durant tot el proc\u00e9s; parlem d&#8217;un dret hum\u00e0 i s&#8217;ha de recon\u00e8ixer com a tal\u201d.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><br>Tamb\u00e9 existeixen reptes a nivell formatiu, apunta, \u201c\u00e9s fonamental promoure la formaci\u00f3 en cures pal\u00b7liatives des de les facultats de Medicina i Infermeria i entre els professionals ja en actiu, des de la formaci\u00f3 cont\u00ednua\u201d. A m\u00e9s, \u201cfaria falta el reconeixement de les Cures Pal\u00b7liatives com a especialitat\u201d, alguna cosa, afirma, que ja existeix en altres pa\u00efsos del nostre entorn com Alemanya, Fran\u00e7a, It\u00e0lia o Portugal.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">L&#8217;atenci\u00f3 preco\u00e7 en cures pal\u00b7liatives \u00e9s una altra de les assignatures pendents, una atenci\u00f3, sostenen des de Sant Joan de D\u00e9u, que ha d&#8217;estar integrada al llarg del proc\u00e9s de la malaltia. Finalment, s&#8217;apel\u00b7la tamb\u00e9 a la implicaci\u00f3 de la comunitat en la cura de les persones que tenen una malaltia avan\u00e7ada.<\/p>\n\n\n\n<h5 class=\"wp-block-heading\">Model integrat<\/h5>\n\n\n\n<p class=\"wp-block-paragraph\">Les cures pal\u00b7liatives, explica Juan Jos\u00e9 Afonso, formen part de l&#8217;ADN de l&#8217;Orde Hospitalari de Sant Joan de D\u00e9u, per aix\u00f2, \u201ca la pr\u00e0ctica, s&#8217;integren dins de la nostra activitat i no nom\u00e9s en els serveis espec\u00edfics sin\u00f3 en tots els nostres serveis assistencials\u201d. Per aix\u00f2, encara que la instituci\u00f3 compta amb dotze unitats espec\u00edfiques de pal\u00b7liatius, dos d&#8217;elles pedi\u00e0triques, tots els seus hospitals i centres de mitjana i llarga estada inclouen, d&#8217;una manera o altra, l&#8217;atenci\u00f3 pal\u00b7liativa.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">A m\u00e9s, Sant Joan de D\u00e9u compta amb un programa d&#8217;atenci\u00f3 psicosocial a pacients i familiars que es duu a terme a trav\u00e9s dels Equips d&#8217;Atenci\u00f3 Psicosocial. Gr\u00e0cies a aquest projecte, que compta amb la col\u00b7laboraci\u00f3 de La Caixa, el 2023 es van atendre m\u00e9s de 12.000 pacients i familiars a tota Espanya.<\/p>\n\n\n\n<h5 class=\"wp-block-heading\">Acceptaci\u00f3 serena de la mort i cura integral<\/h5>\n\n\n\n<p class=\"wp-block-paragraph\">El model d&#8217;atenci\u00f3 de Sant Joan de D\u00e9u contempla una atenci\u00f3 espiritual que, apunta Julio G\u00f3mez, \u201cva m\u00e9s enll\u00e0 del religi\u00f3s i cerca una acceptaci\u00f3 serena de la mort per part del pacient i la seva fam\u00edlia\u201d.<br><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">D&#8217;altra banda, destaca la import\u00e0ncia que adquireix la bio\u00e8tica en tot el proc\u00e9s i, finalment, subratlla tamb\u00e9 la import\u00e0ncia del voluntariat que, en el cas de Sant Joan de D\u00e9u, s&#8217;incorpora a l&#8217;atenci\u00f3 pal\u00b7liativa al costat de l&#8217;equip assistencial.<br><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Una cura hol\u00edstica que garanteix l&#8217;atenci\u00f3 i la dignitat d&#8217;aquestes persones que, en estadis avan\u00e7ats de la seva malaltia, presenten afectaci\u00f3 a tots els nivells: f\u00edsica, psicol\u00f2gica, social i espiritual. \u201cHem de tenir sempre present que parlem de persones el pron\u00f2stic de vida de les quals \u00e9s limitat i aix\u00f2 els provoca un gran patiment tant a ells com als seus \u00e9ssers estimats. <\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Per tant, cal garantir el seu acc\u00e9s a unes cures pal\u00b7liatives individualitzades que, si b\u00e9 en el cas del pacient oncol\u00f2gic solen estar m\u00e9s assegurades, no \u00e9s tant aix\u00ed en altres malalties que tamb\u00e9 hem de tenir presents\u201d. I \u00e9s que existeix una gran demanda assistencial de cures pal\u00b7liatives no vinculades a processos oncol\u00f2gics.<\/p>\n\n\n\n<h5 class=\"wp-block-heading\">Pacients pedi\u00e0trics<\/h5>\n\n\n\n<p class=\"wp-block-paragraph\">Els pal\u00b7liatius s&#8217;estenen tamb\u00e9 a pediatria, on, assegura Julio G\u00f3mez, els problemes d&#8217;acc\u00e9s s\u00f3n encara m\u00e9s grans que en poblaci\u00f3 adulta. Si en adults s\u00f3n els processos oncol\u00f2gics els que m\u00e9s s&#8217;associen a cures pal\u00b7liatives, en el cas dels m\u00e9s petits parlem de malalties neurol\u00f2giques i neurodegerativas.<br><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Malgrat aquestes mancances, al nostre pa\u00eds existeixen grans referents en cures pal\u00b7liatives pedi\u00e0triques com s\u00f3n l&#8217;Hospital Sant Joan de D\u00e9u a Barcelona i tamb\u00e9 <a href=\"https:\/\/sjd.es\/ca\/casa-sofia-alternativa-hospitalitzacio-convencional-infants-malalties-croniques\/\">La Casa de Sofia<\/a>, gestionat pel mateix hospital i que suposa el primer centre d&#8217;atenci\u00f3 interm\u00e8dia d&#8217;Espanya per a l&#8217;atenci\u00f3 al pacient cr\u00f2nic complex o amb malaltia avan\u00e7ada i una opci\u00f3 per a les fam\u00edlies els fills de les quals estan en situaci\u00f3 de final de vida. Tots dos s\u00f3n per a aquest expert un clar exemple del \u201ccom s&#8217;han de fer les coses\u201d, \u201cun model a seguir\u201d. En 2023, aquests centres van atendre 220 nens en cures pal\u00b7liatives, 31 en el domicili.<\/p>\n\n\n\n<h5 class=\"wp-block-heading\">Cures pal\u00b7liatives domicili\u00e0ries<\/h5>\n\n\n\n<p class=\"wp-block-paragraph\">Actualment, existeix una tend\u00e8ncia creixent cap a les cures pal\u00b7liatives domicili\u00e0ries. \u201cSi f\u00e9ssim una enquesta \u2013subratlla Julio G\u00f3mez- la majoria de les persones respondria que desitja viure l&#8217;\u00faltima etapa de la seva vida a casa, al costat dels seus. Al cap i a la fi, la llar \u00e9s el lloc on ens sentim segurs\u201d.<br><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Aquesta tend\u00e8ncia \u00e9s encara m\u00e9s acusada en els nens: \u201cl&#8217;habitual en aquests casos \u00e9s que brindem a les fam\u00edlies aquesta possibilitat, ajudant-les a organitzar-se perqu\u00e8 puguin cuidar els seus fills en el caliu de la llar. Aquestes cures, en moltes ocasions, s\u00f3n m\u00e9s manejables en nens que en poblaci\u00f3 adulta\u201d.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><br>Perqu\u00e8 aix\u00f2 siguin possible cal la coordinaci\u00f3 entre els equips de l&#8217;Atenci\u00f3 Prim\u00e0ria i l&#8217;Hospital. Aix\u00ed i tot, reconeix que \u201cno sempre \u00e9s viable\u201d. Per exemple, pacients els s\u00edmptomes dels quals no siguin controlables en el domicili, fam\u00edlies que f\u00edsica o emocionalment poden veure&#8217;s desbordades per la situaci\u00f3, pacients que prefereixen directament anar a l&#8217;hospital o aquells que viuen en zones als quals no arriba aquesta cobertura. <\/p>\n\n\n\n<h5 class=\"wp-block-heading\">Les cures pal\u00b7liatives a Sant Joan de D\u00e9u<br><\/h5>\n\n\n\n<p class=\"wp-block-paragraph\">\u201cSant Joan de D\u00e9u porta 30 anys prestant cures pal\u00b7liatives en els seus centres i des del principi va comprendre que per respondre de veritat a les necessitats de les persones malaltes i posar-les al centre de l&#8217;atenci\u00f3 calia sortir dels hospitals i anar a casa seva, a les seves comunitats, all\u00e0 on fos la persona\u201d, apunta.<br><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Sant Joan de D\u00e9u Espanya compta tamb\u00e9 amb Cures Pal\u00b7liatives als centres de Zaragoza, Pamplona, el Parc Sanitari Sant Joan de D\u00e9u, l&#8217;Hospital Sant Joan de D\u00e9u Palma \u2013 Inca, l&#8217;Hospital Fundaci\u00f3n Instituto San Jos\u00e9 i l&#8217;Hospital San Rafael de Madrid, el Santa Clotilde de Santander i el San Rafael de Granada.<br><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Per \u00faltim, l&#8217;activitat pal\u00b7liativa als hospitals de Sant Joan de D\u00e9u s&#8217;est\u00e9n tamb\u00e9 als hospitals San Juan Gran de Jerez i San Juan de Dios de Sevilla, Aljarafe, Tenerife, C\u00f2rdova i Le\u00f3n.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Sant Joan de D\u00e9u compta amb 12 dispositius de cures pal\u00b7liatives al nostre pa\u00eds, on, des de fa m\u00e9s de 30 anys, presta tamb\u00e9 cures pal\u00b7liatives domicili\u00e0ries tant en pacients [&hellip;]<\/p>\n","protected":false},"author":21,"featured_media":31701,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"inline_featured_image":false,"_EventAllDay":false,"_EventTimezone":"","_EventStartDate":"","_EventEndDate":"","_EventStartDateUTC":"","_EventEndDateUTC":"","_EventShowMap":false,"_EventShowMapLink":false,"_EventURL":"","_EventCost":"","_EventCostDescription":"","_EventCurrencySymbol":"","_EventCurrencyCode":"","_EventCurrencyPosition":"","_EventDateTimeSeparator":"","_EventTimeRangeSeparator":"","_EventOrganizerID":[],"_EventVenueID":[],"_OrganizerEmail":"","_OrganizerPhone":"","_OrganizerWebsite":"","_VenueAddress":"","_VenueCity":"","_VenueCountry":"","_VenueProvince":"","_VenueState":"","_VenueZip":"","_VenuePhone":"","_VenueURL":"","_VenueStateProvince":"","_VenueLat":"","_VenueLng":"","_VenueShowMap":false,"_VenueShowMapLink":false,"_FSMCFIC_featured_image_caption":"Atenci\u00f3 Pal\u00b7liativa i Cr\u00f2nica Complexa a l'Hospital Sant Joan de D\u00e9u de Barcelona","_FSMCFIC_featured_image_nocaption":"","_FSMCFIC_featured_image_hide":"","footnotes":""},"categories":[415,406,397],"class_list":["post-33798","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-premis-ca","category-hospitalitat","category-final-de-vida-ca"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.8 - 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