{"id":35288,"date":"2024-11-26T17:15:50","date_gmt":"2024-11-26T16:15:50","guid":{"rendered":"http:\/\/sjd.es\/?p=35288"},"modified":"2024-11-26T17:15:53","modified_gmt":"2024-11-26T16:15:53","slug":"els-premis-poco-frecuentes-distingeixen-sant-joan-de-deu-espanya-per-la-seva-responsabilitat-social-institucional","status":"publish","type":"post","link":"https:\/\/sjd.es\/ca\/els-premis-poco-frecuentes-distingeixen-sant-joan-de-deu-espanya-per-la-seva-responsabilitat-social-institucional\/","title":{"rendered":"Els Premis Poco Frecuentes distingeixen Sant Joan de D\u00e9u Espanya per la seva Responsabilitat Social Institucional"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\"><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-primario-color\">Un reconeixement al comprom\u00eds amb les malalties minorit\u00e0ries<\/mark>.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">L&#8217;<a href=\"https:\/\/pocofrecuentes.org\/\" target=\"_blank\" rel=\"noreferrer noopener\">Instituto de Investigaci\u00f3n y Desarrollo Social de Enfermedades Poco Frecuentes (INDEFP)<\/a>, (INDEFP), ha celebrat la setzena edici\u00f3 dels seus <strong>premis anuals<\/strong>. Una trobada en el qual s&#8217;ha distingit a l&#8217;Orde Hospitalari Sant Joan de D\u00e9u Prov\u00edncia d&#8217;Espanya en la categoria de <strong>Responsabilitat Social Institucional<\/strong>.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Juan Jos\u00e9 Afonso, director general de l&#8217;Orde a Espanya, ha sigut l&#8217;encarregat de recollir aquest guard\u00f3 de mans d&#8217;Eusebio Azor\u00edn, director de Relacions Institucionals d&#8217;Ilunion. En la seva intervenci\u00f3, Afonso no ha volgut deixar passar l&#8217;oportunitat de donar l&#8217;enhorabona tant a INDEFP, institut que presideix Jes\u00fas Ignacio Meco, com a la resta de premiats, personalitats, institucions i empreses, totes elles <strong>compromeses amb les malalties minorit\u00e0ries<\/strong>.<\/p>\n\n\n\n<figure class=\"wp-block-gallery aligncenter has-nested-images columns-default is-cropped wp-block-gallery-1 is-layout-flex wp-block-gallery-is-layout-flex\">\n<figure class=\"wp-block-image size-large\"><a data-lg-transition=\"disabled\" href=\"http:\/\/sjd.es\/wp-content\/uploads\/2024\/11\/JuanJoseAfonsoPremiosPocoFrecuentes-scaled.jpeg\"><img decoding=\"async\" src=\"data:image\/gif;base64,R0lGODlhAQABAIAAAAAAAP\/\/\/yH5BAEAAAAALAAAAAABAAEAAAIBRAA7\" data-src=\"http:\/\/sjd.es\/wp-content\/uploads\/2024\/11\/JuanJoseAfonsoPremiosPocoFrecuentes-572x800.jpeg\" data-id=\"35284\" alt=\"Juan Jos\u00e9 Afonso, director general de San Juan de Dios Espa\u00f1a, recoge el Premio Poco Frecuentes en la categor\u00eda de Responsabilidad Social Institucional\" class=\"wp-image-35284 lazyload\"><noscript><img decoding=\"async\" width=\"572\" height=\"800\" data-id=\"35284\" src=\"http:\/\/sjd.es\/wp-content\/uploads\/2024\/11\/JuanJoseAfonsoPremiosPocoFrecuentes-572x800.jpeg\" alt=\"Juan Jos\u00e9 Afonso, director general de San Juan de Dios Espa\u00f1a, recoge el Premio Poco Frecuentes en la categor\u00eda de Responsabilidad Social Institucional\" class=\"wp-image-35284\" srcset=\"https:\/\/sjd.es\/wp-content\/uploads\/2024\/11\/JuanJoseAfonsoPremiosPocoFrecuentes-572x800.jpeg 572w, https:\/\/sjd.es\/wp-content\/uploads\/2024\/11\/JuanJoseAfonsoPremiosPocoFrecuentes-357x500.jpeg 357w, https:\/\/sjd.es\/wp-content\/uploads\/2024\/11\/JuanJoseAfonsoPremiosPocoFrecuentes-768x1075.jpeg 768w, https:\/\/sjd.es\/wp-content\/uploads\/2024\/11\/JuanJoseAfonsoPremiosPocoFrecuentes-50x70.jpeg 50w, https:\/\/sjd.es\/wp-content\/uploads\/2024\/11\/JuanJoseAfonsoPremiosPocoFrecuentes-1600x2240.jpeg 1600w, https:\/\/sjd.es\/wp-content\/uploads\/2024\/11\/JuanJoseAfonsoPremiosPocoFrecuentes-1097x1536.jpeg 1097w, https:\/\/sjd.es\/wp-content\/uploads\/2024\/11\/JuanJoseAfonsoPremiosPocoFrecuentes-1463x2048.jpeg 1463w, https:\/\/sjd.es\/wp-content\/uploads\/2024\/11\/JuanJoseAfonsoPremiosPocoFrecuentes-scaled.jpeg 1829w\" sizes=\"(max-width: 572px) 100vw, 572px\" \/><\/noscript><\/a><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><a data-lg-transition=\"disabled\" href=\"http:\/\/sjd.es\/wp-content\/uploads\/2024\/11\/JuanJoseAfonsoEusebioAzorin-scaled.jpeg\"><img decoding=\"async\" src=\"data:image\/gif;base64,R0lGODlhAQABAIAAAAAAAP\/\/\/yH5BAEAAAAALAAAAAABAAEAAAIBRAA7\" data-src=\"http:\/\/sjd.es\/wp-content\/uploads\/2024\/11\/JuanJoseAfonsoEusebioAzorin-497x800.jpeg\" data-id=\"35286\" alt=\"Juan Jos\u00e9 Afonso, director general de San Juan de Dios Espa\u00f1a, recoge el Premio Poco Frecuentes en la categor\u00eda de Responsabilidad Social Institucional\" class=\"wp-image-35286 lazyload\"><noscript><img decoding=\"async\" width=\"497\" height=\"800\" data-id=\"35286\" src=\"http:\/\/sjd.es\/wp-content\/uploads\/2024\/11\/JuanJoseAfonsoEusebioAzorin-497x800.jpeg\" alt=\"Juan Jos\u00e9 Afonso, director general de San Juan de Dios Espa\u00f1a, recoge el Premio Poco Frecuentes en la categor\u00eda de Responsabilidad Social Institucional\" class=\"wp-image-35286\" srcset=\"https:\/\/sjd.es\/wp-content\/uploads\/2024\/11\/JuanJoseAfonsoEusebioAzorin-497x800.jpeg 497w, https:\/\/sjd.es\/wp-content\/uploads\/2024\/11\/JuanJoseAfonsoEusebioAzorin-311x500.jpeg 311w, https:\/\/sjd.es\/wp-content\/uploads\/2024\/11\/JuanJoseAfonsoEusebioAzorin-768x1235.jpeg 768w, https:\/\/sjd.es\/wp-content\/uploads\/2024\/11\/JuanJoseAfonsoEusebioAzorin-50x80.jpeg 50w, https:\/\/sjd.es\/wp-content\/uploads\/2024\/11\/JuanJoseAfonsoEusebioAzorin-1600x2573.jpeg 1600w, https:\/\/sjd.es\/wp-content\/uploads\/2024\/11\/JuanJoseAfonsoEusebioAzorin-955x1536.jpeg 955w, https:\/\/sjd.es\/wp-content\/uploads\/2024\/11\/JuanJoseAfonsoEusebioAzorin-1273x2048.jpeg 1273w, https:\/\/sjd.es\/wp-content\/uploads\/2024\/11\/JuanJoseAfonsoEusebioAzorin-scaled.jpeg 1592w\" sizes=\"(max-width: 497px) 100vw, 497px\" \/><\/noscript><\/a><\/figure>\n<\/figure>\n\n\n\n<div style=\"height:20px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p class=\"wp-block-paragraph\">Afonso va fer refer\u00e8ncia a la <strong>vulnerabilitat<\/strong> que confereixen les malalties poc freq\u00fcents que, va subratllar, \u201cafecten moltes persones si les prenem en el seu conjunt, encara que, de forma a\u00efllada, no aconsegueixen fer-se eco pel limitat percentatge al qual afecta cadascuna d&#8217;elles\u201d.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u201cEns agradi o no \u2013va afegir- vivim en un m\u00f3n de tants per cent. La difer\u00e8ncia \u00e9s que mentre la majoria para esment nom\u00e9s als grans percentatges, uns altres, i en aix\u00f2 coincidim amb l&#8217;INDEFP i la resta de premiats, posem tamb\u00e9 el focus en els petits, en els quals uns altres consideren invisibles i que, per a nosaltres, s\u00f3n part de la <strong>nostra ess\u00e8ncia i ra\u00f3 de ser<\/strong>\u201d.<\/p>\n\n\n\n<h5 class=\"wp-block-heading\">\u00daniques SJD<\/h5>\n\n\n\n<p class=\"wp-block-paragraph\">Aix\u00ed mateix, va aprofitar l&#8217;oportunitat per a destacar la posada en marxa d&#8217;<a href=\"https:\/\/sjd.es\/ca\/edifici-investigacio-malalties-minoritaries-sant-joan-de-deu\/\" target=\"_blank\" rel=\"noreferrer noopener\">\u00danicas SJD<\/a>, un <strong>centre monogr\u00e0fic<\/strong> que iniciar\u00e0 la seva activitat el 2025 i es convertir\u00e0, de la m\u00e0 de l&#8217;<strong><a href=\"https:\/\/www.sjdhospitalbarcelona.org\/\" target=\"_blank\" rel=\"noreferrer noopener\">Hospital Sant Joan de D\u00e9u Barcelona<\/a><\/strong>, en un dels <strong>campus m\u00e9s grans del m\u00f3n<\/strong> dedicats a les malalties minorit\u00e0ries.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Un reconeixement al comprom\u00eds amb les malalties minorit\u00e0ries. L&#8217;Instituto de Investigaci\u00f3n y Desarrollo Social de Enfermedades Poco Frecuentes (INDEFP), (INDEFP), ha celebrat la setzena edici\u00f3 dels seus premis anuals. Una [&hellip;]<\/p>\n","protected":false},"author":21,"featured_media":35281,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"inline_featured_image":false,"_EventAllDay":false,"_EventTimezone":"","_EventStartDate":"","_EventEndDate":"","_EventStartDateUTC":"","_EventEndDateUTC":"","_EventShowMap":false,"_EventShowMapLink":false,"_EventURL":"","_EventCost":"","_EventCostDescription":"","_EventCurrencySymbol":"","_EventCurrencyCode":"","_EventCurrencyPosition":"","_EventDateTimeSeparator":"","_EventTimeRangeSeparator":"","_EventOrganizerID":[],"_EventVenueID":[],"_OrganizerEmail":"","_OrganizerPhone":"","_OrganizerWebsite":"","_VenueAddress":"","_VenueCity":"","_VenueCountry":"","_VenueProvince":"","_VenueState":"","_VenueZip":"","_VenuePhone":"","_VenueURL":"","_VenueStateProvince":"","_VenueLat":"","_VenueLng":"","_VenueShowMap":false,"_VenueShowMapLink":false,"_FSMCFIC_featured_image_caption":"","_FSMCFIC_featured_image_nocaption":"","_FSMCFIC_featured_image_hide":"","footnotes":""},"categories":[415],"class_list":["post-35288","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-premis-ca"],"acf":[],"yoast_head":"<!-- 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