{"id":51214,"date":"2026-03-25T15:02:12","date_gmt":"2026-03-25T14:02:12","guid":{"rendered":"https:\/\/sjd.es\/la-orquesta-sinfonica-de-madrid-llena-el-teatro-la-latina-en-un-concierto-solidario-por-la-ela-cuyos-fondos-iran-al-hospital-san-rafael-de-granda-y-al-csic\/"},"modified":"2026-07-15T17:11:29","modified_gmt":"2026-07-15T15:11:29","slug":"orquestra-simfonica-de-madrid-omple-el-teatre-la-latina-en-un-concert-solidari-per-lela","status":"publish","type":"post","link":"https:\/\/sjd.es\/ca\/orquestra-simfonica-de-madrid-omple-el-teatre-la-latina-en-un-concert-solidari-per-lela\/","title":{"rendered":"L\u2019Orquestra Simf\u00f2nica de Madrid omple el teatre La Latina en un concert solidari per l\u2019ELA que recapta fons per a l\u2019Hospital San Rafael de Granada i el CSIC"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\">M\u00e9s de 600 persones van assistir ahir al concert organitzat per l\u2019Orquestra Simf\u00f2nica de Madrid a l\u2019emblem\u00e0tic Teatre La Latina amb l\u2019objectiu de recaptar fons destinats a programes de cura i investigaci\u00f3 en esclerosi lateral amiotr\u00f2fica (ELA) a l\u2019<strong>Hospital San Rafael de Granada<\/strong> i al <strong>Centre Superior d\u2019Investigacions Cient\u00edfiques (CSIC)<\/strong>, respectivament.<\/p>\n\n\n\n<figure class=\"wp-block-image aligncenter size-large\"><a data-lg-transition=\"disabled\" href=\"https:\/\/sjd.es\/wp-content\/uploads\/2026\/03\/P1088029.jpg\"><img decoding=\"async\" src=\"data:image\/gif;base64,R0lGODlhAQABAIAAAAAAAP\/\/\/yH5BAEAAAAALAAAAAABAAEAAAIBRAA7\" data-src=\"https:\/\/sjd.es\/wp-content\/uploads\/2026\/03\/P1088029-1067x800.jpg\" alt=\"\" class=\"wp-image-51167 lazyload\"><noscript><img decoding=\"async\" width=\"1067\" height=\"800\" src=\"https:\/\/sjd.es\/wp-content\/uploads\/2026\/03\/P1088029-1067x800.jpg\" alt=\"\" class=\"wp-image-51167\" srcset=\"https:\/\/sjd.es\/wp-content\/uploads\/2026\/03\/P1088029-1067x800.jpg 1067w, https:\/\/sjd.es\/wp-content\/uploads\/2026\/03\/P1088029-667x500.jpg 667w, https:\/\/sjd.es\/wp-content\/uploads\/2026\/03\/P1088029-768x576.jpg 768w, https:\/\/sjd.es\/wp-content\/uploads\/2026\/03\/P1088029-1536x1152.jpg 1536w, https:\/\/sjd.es\/wp-content\/uploads\/2026\/03\/P1088029.jpg 2048w\" sizes=\"(max-width: 1067px) 100vw, 1067px\" \/><\/noscript><\/a><figcaption class=\"wp-element-caption\">D&#8217;esquerra a dreta: Graziella Almendral, impulsora de la iniciativa; la investigadora Ana Mart\u00ednez i el gerent de San Rafael, Jos\u00e9 Luis Castellar<\/figcaption><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\">Abans de l\u2019inici del concert, Graziella Almendral, presidenta de l&#8217;Asociaci\u00f3n Nacional de Informadores de la Salud (ANIS) i una de les impulsores d\u2019aquesta iniciativa juntament amb el director d\u2019orquestra, Sancho Almendral, va cridar a l\u2019escenari els representants de les entitats benefici\u00e0ries i de les associacions de pacients d\u2019\u00e0mbit estatal, que tampoc van dubtar a sumar\u2011se a la iniciativa, com AdELA i ConELA.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">El gerent de l\u2019<strong>Hospital San Rafael<\/strong>, Jos\u00e9 Luis Castellar, va ser el primer a pujar a l\u2019escenari, oportunitat que va aprofitar per, en nom de <strong>Sant Joan de D\u00e9u Espanya<\/strong>, agrair el gest i recordar la import\u00e0ncia de l\u2019atenci\u00f3 que reben aquests pacients, el pron\u00f2stic dels quals, avui dia, continua sent devastador. Per aix\u00f2, va afegir, a m\u00e9s de les cures per intentar pal\u00b7liar el deteriorament progressiu d\u2019aquestes persones, \u00e9s tan necess\u00e0ria la investigaci\u00f3. Va ser aleshores el torn d\u2019Ana Mart\u00ednez i Carmen Gil, investigadores principals de l\u2019estudi del CSIC al qual anir\u00e0 l\u2019altra part del recaptat la nit anterior. Un estudi que, precisament fa uns dies, obtenia l\u2019autoritzaci\u00f3 per iniciar l\u2019assaig cl\u00ednic de Fase I amb un nou f\u00e0rmac.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Per part dels pacients, el president de ConELA, Fernando Mart\u00edn, va insistir de nou en la import\u00e0ncia de les cures i de la investigaci\u00f3 i va recordar que, actualment, l\u2019abast de la llei ELA \u2014tan necess\u00e0ria\u2014 continua sent molt limitat, motiu pel qual calen altres tipus de suports que ajudin i acompanyin els pacients i les seves fam\u00edlies durant tot el proc\u00e9s de la malaltia.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">En representaci\u00f3 de <strong>Sant Joan de D\u00e9u Espanya<\/strong> hi van assistir Josep Pifarr\u00e9, director general; el Germ\u00e0 Mois\u00e9s Mart\u00edn, secretari provincial; i Elena Urdaneta, directora de la Unitat Territorial III, juntament amb nombrosos col\u00b7laboradors de la instituci\u00f3 que no van voler perdre\u2019s l\u2019oportunitat de col\u00b7laborar i gaudir del repertori preparat per a l\u2019ocasi\u00f3, un recorregut per obres de grans compositors com Vivaldi, Txaikovski, Grieg o Bart\u00f3k.<\/p>\n\n\n\n<figure class=\"wp-block-gallery aligncenter has-nested-images columns-default is-cropped wp-block-gallery-1 is-layout-flex wp-block-gallery-is-layout-flex\">\n<figure class=\"wp-block-image size-large\"><a data-lg-transition=\"disabled\" href=\"https:\/\/sjd.es\/wp-content\/uploads\/2026\/03\/P1088065.jpg\"><img decoding=\"async\" src=\"data:image\/gif;base64,R0lGODlhAQABAIAAAAAAAP\/\/\/yH5BAEAAAAALAAAAAABAAEAAAIBRAA7\" data-src=\"https:\/\/sjd.es\/wp-content\/uploads\/2026\/03\/P1088065-1067x800.jpg\" data-id=\"51169\" alt=\"\" class=\"wp-image-51169 lazyload\"><noscript><img decoding=\"async\" width=\"1067\" height=\"800\" data-id=\"51169\" src=\"https:\/\/sjd.es\/wp-content\/uploads\/2026\/03\/P1088065-1067x800.jpg\" alt=\"\" class=\"wp-image-51169\" 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[&hellip;]<\/p>\n","protected":false},"author":21,"featured_media":61004,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"inline_featured_image":false,"_EventAllDay":false,"_EventTimezone":"","_EventStartDate":"","_EventEndDate":"","_EventStartDateUTC":"","_EventEndDateUTC":"","_EventShowMap":false,"_EventShowMapLink":false,"_EventURL":"","_EventCost":"","_EventCostDescription":"","_EventCurrencySymbol":"","_EventCurrencyCode":"","_EventCurrencyPosition":"","_EventDateTimeSeparator":"","_EventTimeRangeSeparator":"","_EventOrganizerID":[],"_EventVenueID":[],"_OrganizerEmail":"","_OrganizerPhone":"","_OrganizerWebsite":"","_VenueAddress":"","_VenueCity":"","_VenueCountry":"","_VenueProvince":"","_VenueState":"","_VenueZip":"","_VenuePhone":"","_VenueURL":"","_VenueStateProvince":"","_VenueLat":"","_VenueLng":"","_VenueShowMap":false,"_VenueShowMapLink":false,"_FSMCFIC_featured_image_caption":"","_FSMCFIC_featured_image_nocaption":"","_FSMCFIC_featured_image_hide":"","footnotes":""},"categories":[400],"class_list":["post-51214","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-solidaritat"],"acf":[],"yoast_head":"<!-- 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